Let me first note that I'm an intersex person who tends to read whatever I can find on the topic. Over the past decade, there has been a modest burst of publishing on intersex status (or what the medical field now terms "DSDs" for "Disorders of Sex Development"), but much of what books cover overlaps. Books tend to fall into one of two categories. There are those with a hard science perspective, which take an "expert" standpoint to explain why people are born intersexed and what that shows us about prenatal development, evolution, the role of hormones, etc. Then there are those with an advocacy perspective, that point out that the current medical "treatment" for children born intersex--infant surgical sex assignment--is highly problematic, because it often leads to the sacrifice of sexual sensation, and because the sex assigned at birth can be the wrong one.
What Karkazis does in her book is to bridge the gap between a focus on science and a focus on the experiences of intersex people. She interviews doctors, parents of intersex children, and adult intersex individuals to lay out for the reader their various perspectives. Her basic conclusion is that medical practitioners are ignorant of or dismiss the experiences of intersex adults, which leads doctors to continue to advocate and perform infant sex assignment procedures despite the manifestly negative consequences for many intersex people. She also shows how doctors' stance--that intersex status is a defect, a social emergency that can and must be treated medically--convinces parents to consent to treatments that they often later regret condoning. So Karkazis' findings are in line with books written by intersex advocates. But by including medical information and interviews with medical practitioners, Karkazis shows her readers why the unhappiness of intersex people with treatment they receive has not done much to change medical practice.
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